About Us

Amanda founded Kira’s Grace Foundation to honor the life and legacy of her daughter, Kira, and to ensure that families facing disability and complex medical needs never feel alone. As a registered nurse and the parent of a child with significant medical needs, Amanda combines professional knowledge with personal experience to provide compassionate, practical support to families throughout South Central Pennsylvania.

As Board Chair, Amanda helps guide the foundation’s mission, programs, and long-term goals while working closely with the board to ensure the organization remains responsive to the needs of the community. In her role as Director of Programs and Family Advocacy, she oversees family assistance requests, coordinates the Grace Mobile Closet and adaptive-equipment programs, connects families with trusted resources, and advocates for individuals navigating healthcare, disability services, and other support systems.

Amanda also helps develop community partnerships, coordinate programs and events, and identify meaningful ways for the foundation to meet unmet needs. Her passion is rooted in building genuine connections, reducing barriers, and helping every family feel heard, understood, and supported.

Kylan serves as President and Director of Development for Kira’s Grace Foundation and is proud to help carry forward the legacy of his sister, Kira. As President, he works closely with the Board Chair and fellow board members to support the foundation’s strategic direction, strengthen its operations, and help ensure its programs continue to meet the needs of families throughout South Central Pennsylvania.

In his role as Director of Development, Kylan leads fundraising and donor-development efforts, explores grant opportunities, builds relationships with community partners and local businesses, and helps develop new ways to increase awareness and support for the foundation’s mission. He also contributes to the foundation’s marketing and digital outreach efforts.

Kylan is currently pursuing a bachelor’s degree in nonprofit management and brings fresh ideas, creativity, and a strong commitment to the organization’s continued growth. As the father of a child with special needs, he also brings personal understanding of the challenges families may experience while navigating services, resources, and community inclusion. Kylan is passionate about creating lasting connections and helping Kira’s Grace Foundation build a sustainable future for the families it serves.

Dale serves as Vice President and Director of Operations for Kira’s Grace Foundation. As a proud father to Kira, he is deeply committed to honoring her life and helping carry forward the compassion, strength, and purpose that inspired the foundation’s mission.

As Vice President, Dale supports the Board Chair and President in guiding the organization, making important decisions, and ensuring the foundation remains focused on the families and communities it serves. In his role as Director of Operations, he oversees much of the hands-on work that keeps the foundation’s programs running smoothly.

Dale coordinates the pickup, transportation, and delivery of large medical equipment and donated supplies for the Grace Mobile Closet and Butterfly Exchange. He also assists with inventory, storage, event setup and breakdown, and the many behind-the-scenes logistics needed to make community programs and fundraising events successful.

Known as the muscle behind the mission, Dale brings reliability, practical problem-solving, and a willingness to step in wherever he is needed. His dedication helps Kira’s Grace Foundation turn ideas into action and deliver meaningful support directly to families.

Kristi serves as Secretary and Communications Coordinator for Kira’s Grace Foundation. She supports the organization by maintaining accurate records, documenting board meetings, assisting with board communication, and helping manage incoming emails and inquiries so they reach the appropriate team member.

As the parent of a child with special needs, Kristi brings valuable lived experience, compassion, and a personal understanding of the challenges families may face while navigating services and support. She is excited to serve Kira’s Grace Foundation and contribute to its mission of helping individuals with disabilities and their families feel supported, connected, and understood.

Barb serves as Treasurer of Kira’s Grace Foundation, bringing both professional healthcare experience and a deeply personal connection to its mission. As one of Kira’s former nurses, Barb witnessed firsthand the medical, emotional, and everyday challenges experienced by children with complex needs and the families who care for them.

In her role as Treasurer, Barb oversees the foundation’s financial records, monitors income and expenses, assists with budgeting, and provides financial reports to the board. She helps ensure that donations and organizational funds are handled responsibly, transparently, and in accordance with the foundation’s policies and nonprofit requirements. Barb also works with the board to support thoughtful financial planning and ensure resources are directed where they can have the greatest impact.

Her compassion, attention to detail, and commitment to accountability make her an important part of the foundation’s leadership. Barb is proud to help protect Kira’s legacy while supporting the long-term stability and growth of Kira’s Grace Foundation.

Carie serves as Clinical Director and a non-voting member of Kira’s Grace Foundation’s leadership team. A longtime supporter of Kira’s journey, she brings compassion, clinical knowledge, and extensive pediatric nursing experience to the foundation’s mission.

Carie is a Certified Pediatric Nurse with a Bachelor of Science in Nursing and has dedicated her career to caring for children with complex medical conditions, disabilities, and specialized healthcare needs. As Clinical Director, she provides clinical insight to help the foundation better understand the needs of the families it serves. She also offers guidance related to pediatric healthcare, medical equipment, family education, and the safety and appropriateness of foundation programs and resources.

Through her advisory role, Carie helps ensure the foundation’s programs remain compassionate, informed, and responsive to the real-life needs of children with medical complexity and their caregivers. Her experience and commitment strengthen Kira’s Grace Foundation’s ability to support families with understanding, dignity, and care.

Kira’s Grace Foundation was created in loving memory of Kira Grace, whose beautiful life continues to inspire everything we do. Born with osteogenesis imperfecta, Kira lived with significant medical complexities, but those challenges never defined the joy, strength, humor, and love she brought into the world.

Throughout her 17 years, Kira taught those around her what it meant to live fully, love deeply, and face every challenge with courage. She had a smile that could brighten any room, a special love for penguins and Happy Feet, and a remarkable ability to leave a lasting impression on everyone fortunate enough to know her.

Kira’s journey also revealed how overwhelming it can be for families to navigate complex healthcare needs, disability services, specialized equipment, and the search for meaningful community support. Her life became the inspiration for a foundation dedicated to making that journey a little easier for others.

Every family we support, every connection we create, and every barrier we help overcome carries Kira’s legacy forward. Through this mission, her love and light continue to remind families that they are seen, understood, and never alone.